It looked like autism...….but it wasn't.  If there were more funds available for research, Trenton Greer's doctors may have reached a diagnosis sooner.  Instead, Trenton was diagnosed with Sanfilippo Syndrome a year before he died.  He passed away exactly a month after his 9th birthday last year.

 

As Trenton neared the age of 3, he was diagnosed as learning delayed.  His parents were told it was okay, he would catch up.  And he made progress.  He learned to ride a bike, shoot baskets, and even learned sign language.  But then it started to change.  His personality changed.  Suddenly he couldn't hold utensils to feed himself.  He started tripping easily when before he could race his cousins around the backyard.

 

His doctors decided it was autism.  That he fell somewhere on the spectrum. He had repetitive habits like hand-flapping, he was constantly in motion, he was sensitive to certain textures and sounds, he became aggressive at times, he hadn't learned to speak, and he was losing skills that he had learned before.  But, to the doctors, it looked like autism…..

 

Little did they know he had a degenerative disease called Sanifilippo Syndrome.  Sanifilippo Syndrome is not a widely known disease.  Many doctors have never even heard of it.  Sanfilippo would cause Trenton to fight for his ability to eat, to swallow, and eventually to breathe. His parents and loved ones had to watch him slowly slip away from the amazing sweet boy that he once was.

 

It's hard to pick the thing you miss most about a loved one.  Trenton had the most amazing laugh.  He was so happy!  Everything made him smile.  And those eyes and eyebrows he got from his momma! 

 

We all have something we miss the most about Trenton.

So, we try to raise awareness in his name, for Team T-man.  To help support that family who just found out about their child's diagnosis.  To raise funds for those who may or may not know that they carry the gene for this disease.  And to carry on the memory of T-man, who will forever and always be loved.